Is the care industry actually caring?

We know Carers Week usually focuses on celebrating the hard work carers do and raising awareness of the challenges they face. But sadly for many disabled people, we face the difficulty of finding good quality, safe, reliable and trustworthy carers, which brings the question – is the care industry actually caring?

I know I’ve mentioned the difficulties I’ve had in finding and retaining good carers before on here and some of the most ridiculous things I’ve had to face over the years. But in this blog post, I want to go more in-depth and go through all the care incidents I’ve encountered over the past five years and the reasons why I moved back in with my parents.

From 2017 to 2022, I’ve gone through eight care agencies and a total of 21 carers. A majority of the below content is copies of diary entries I wrote when I was undergoing CBT therapy as a way of highlighting the everyday challenges I’ve faced with carers.

(For confidential purposes and to protect individuals’ and companies’ privacy, I’m not naming the care agencies or carers involved – as much as I’d love to name and shame them!)

Care Agency 1 (July 2017 – Oct 2017)

My first care agency was an introductory company that finds clients for self-employed carers. I had a total of eight carers at this company.

Carer 1

The first carer I had stayed with me for 6 weeks. The first three/four weeks were quite good but later she began to be controlling, would do everything her way and became quite rude. We mutually agreed it wasn’t working out and asked the agency to find me a new carer.

In one incident, I went to a local Wetherspoons pub called The Ivy to meet up with a couple of friends of mine. We parked up and walked to the pub door. I’d been to this pub plenty of times and knew exactly where we were. She then abruptly stopped and said wait there I will go and check and walked away from me. I tried to say we are at the right place and she ignored me. She came back to say we are at The Ivy, I think we’re in the wrong place and I repeated that we are in the right place. I went on to explain that I do know where we’re going and if you’re not sure just ask me but she continued to ignore me and we just entered the pub.

Another time, one morning, she said my bed was wet and we have to change the sheets.
In the evening, I was getting ready for bed and noticed she was about to put the same pyjamas on. I asked if they were wet as the bed was wet. She said no which I found weird as how can the bed get wet if the PJ’s didn’t. I asked are you sure because you said the bed was wet this morning.

She then got in a huff with me, threw the old PJs in the washing basket and got new ones out. I groaned in frustration and was on the verge of tears. She asked what was wrong and I said I’m pissed off. I tried to continue asking if the bed was actually wet because I was flummoxed why she would’ve mentioned it this morning and then put the same PJs on. She didn’t answer me so I said are you going to answer my question and she said something like “I can’t remember what I said, I just don’t listen.” I then said you can’t work well in the care industry if you don’t listen to people. She then responded with “No I just don’t listen to you” After that I just kept quiet.

Carer 2

Two weeks later, my second carer began but she literally lasted two days. She travelled from Eastern Europe on the day of her first shift, spoke very little English and did not understand my disabilities or care needs. She was unsafe to drive my car because she had never driven a manual vehicle. She kept jerking and stalling my car, drove into oncoming traffic and did not understand my directions at all.

The night she did my personal care she could barely understand my instructions. At one point I was lying on my bed and asked her to pass me my bed remote so I could sit myself up. She did not understand me at all. I tried saying it in different ways and miming the action but nothing. Eventually, I had to call a friend of mine who used to work at my domiciliary care agency and lived 20mins away, to come help take over my care. I felt guilty asking her but it was the only choice I had at 11pm.

In addition, this carer accused me of starving her. The day she arrived I did not have much food in the house. On her first evening, I asked if she was happy with a takeaway and we’d go grocery shopping tomorrow. She said that was fine so I ordered the takeaway. However, when the food arrived she said she didn’t like that stuff despite me asking she was ok with pizza and sides. So that evening she ate nothing. The following day after her dangerous driving, I decided it wasn’t safe to go to the supermarket and instead, I’ll do an online delivery. This meant the food wouldn’t arrive until tomorrow and therefore I would have to get another takeaway. I explained she is welcome to walk into town and get some food for herself but I don’t think she understood. She then found an old packet of doughnuts in the kitchen. I’d bought them a week ago with my previous carer thinking the carer had eaten the rest of them. This carer asked me if she could eat them but I said they are a week old and may have gone stale. She didn’t understand me and began crying and saying I wouldn’t let her eat.

On another occasion, after going to the toilet, I asked her if we had any takeaway food left over from last night. I had to repeat multiple times and sound like I’m talking to a child or voice-activated software. What was supposed to take 5 mins to put a couple of slices of pizza and a few chicken dippers on a plate and heat up in the microwave took 45mins!

Also, one morning at 6:45am, she decided to walk into my bedroom and woke me up because she heard a noise outside and thought it meant it was time to get up.

I had a GP appointment at 12:15pm and was going to walk there meaning we didn’t need the car keys but she didn’t understand. I then spent a minute trying to explain to her I have a spare house key in the key safe outside. She still had no idea what I meant so I gave in and told her to take the car keys instead.

When walking to the GP she had no idea what I meant by the drop-down curb and I spent the majority driving myself guessing obstacles because she couldn’t tell me. Then sometimes she would stop me for no reason or not say why.

I knew she wasn’t safe to work with so I immediately contacted the care agency and she was removed. Because this was an urgent change around, they could only send me the next available carer.

Carer 3

The third carer was not much better. She was unable to drive so I was trapped in the house all week, which was even worse by the fact my bathroom still needed work done meaning I was using a shower in a care home, but couldn’t go without a driver. Her English wasn’t great either. She had strong religious beliefs and kept praying for me because of my disabilities and poor personal choices – such as liking Harry Potter.

One evening, I was in bed reading my book when I heard a faint singing voice. I initially thought it was a drunk person walking past outside. However, it kept going for several minutes and became louder. I then discovered at 12:30am it was the carer. I use a doorbell as a buzzer if I need assistance in the night. I rang it so I could ask her to stop but she couldn’t hear. It then occurred to me she must have earphones on. I continued buzzing and calling her name for 30mins. Eventually, she answered but wasn’t apologetic at all that it disturbed me and my upstairs neighbours.

One day, I had to wait over an hour for her to write a shopping list and get ready to go to the shop. When we eventually left I had to go to the pharmacy first. As I was entering the pharmacy car park my chair skidded towards a curb and instead of her automatically coming to help, she just stood there.

Then on the way back, I got too near a curb and when I tried to fix it, I accidentally dropped my front wheel in the road. Again she just stood and watched until I yelled for help. She then had a go at me for not listening. I did hear her but I couldn’t see well enough to fix it.

I said the easiest way is to get her to drive the chair and she wasn’t happy doing that either. She then suggested putting the chair on manual but I told her that would be more difficult when we have 25 min walk. She can’t drive my car either so we ended up going home instead.

A few days later, I was due to go to a music festival with my friend who used to work at the domiciliary care agency. When she arrived she witnessed several things; my seatbelt was broken, a puddle of urine on my “new” bedroom carpet and a hinge had come off the carer’s bedroom door – but the carer did not bother to tell me any of this.

When I got back from Reading Festival and as soon as parked up in the driveway, she was already irritating both me and my friend. She kept trying to move the portable hoist herself when my friend said 3 times she would do it.

Then the rest of the afternoon/evening I had to repeat everything. I wasn’t very well and had hardly any voice and she had no sympathy or understanding for this. When I vomited, I called her and she took her time, then when I said I may vomit more she just wiped with a tissue rather than getting a bowl for me.

Carers 4 to 9

The order of the next few carers are a bit of a blur, however, they were all unsuitable or unsafe. About two/three of them complained of back pain when doing personal care – despite me repeatedly saying to raise the bed up.

One carer accused me of refusing her a proper break even though I told the agency I currently couldn’t be left alone because my house wasn’t fully accessible yet and I had no way of evacuating in an emergency and I couldn’t afford domiciliary care too. However, the carers were welcome to relax in their bedroom or the garden for two/three hours a day.

Another carer had no idea how to put a catheter night bag on and I had no friends or family to help so had to call 111 for assistance at 11pm.

In another incident after going to the toilet, the carer kept wiping me a lot. At one point, she wiped my left groin quite hard which hurt. When I moved towards the bed, she kept holding a wipe on my groin and I asked why she was touching my groin and she said “It is bleeding”. I asked why didn’t you tell me as soon as it happened and if it still bleeding now. It was and I said then you need to stop the bleeding before I go on the bed.

One day, I went to the toilet but after dressing and getting back in my chair, my urethral catheter was really uncomfortable and I asked to be put back on the bed to adjust it. Once on the bed, the carer moaned about the fact I needed to take my trousers & knickers down & roll me again. She was saying her back was hurting but I had no other way of doing it. She kept going on about she is in pain but there was nothing I could do and I still needed my care done. I got so pissed off I burst into tears and shouted back that I’m in pain too, physically & mentally and I might as well die then. After crying for several minutes, the doorbell went and I had to quickly compose myself and go straight back in my wheelchair with the catheter still uncomfortable. I later phoned mum to get her to take over my care tomorrow.

The next day, Mum and I spoke to this carer regarding the care situation. She denied there was no problem with the care then I reminded her of the rolling incident yesterday and she said that she can roll me but not several times. Mum explained that this is part of my care and if I need to roll several times then I will. We eventually encouraged her to leave as there was no point having the carer and Mum both being there.

Carer 10

The final carer I had with this agency constantly complained about how overworked she was despite only doing about 3 hours of personal care and cooking meals. She couldn’t drive so the rest of the time she was in her room sleeping or on her phone. Also, she accused me of forcing her to cook pork and give me alcohol when I knew she was a Muslim and I asked if this was ok at the beginning of her shift.

By October, I made the decision this care agency wasn’t working out. They weren’t sending me carers suitable or safe for my needs but just anybody available.

Care Agency 2 (October 2017)

At this agency, I only used two carers then decided to leave due to poor quality care and service.

Carer 11

The first carer was a woman in her 60s who was overweight and a smoker. She was only available for a week as she was going away the following week. She was ok but again not very suitable for my needs. Her chest sounded so bad from smoking, that she could barely breathe.

Carer 12

The second carer I had for about two weeks but was very unsuitable and unsafe. Her English was poor which made communication hard.

One day I asked her to heat a sausage roll in the microwave for 20 secs. Instead, she put in a roar frozen sausage. Luckily I had the mental capacity and common sense not to eat it.

Another day, my Mum came over and discovered a wet urine patch on the end of my bed where the carer has spilt my night bag but never bothered to change the sheet.

She was also not a safe driver and kept stalling the car and driving into oncoming traffic.

Throughout my evening care, she kept doing the order of my care wrong and not listening to me. She then left my room before everything was complete and didn’t say goodnight. My bed table was far away so I had to pull it forward which accidentally knocked some objects down. I buzzed for assistance and she accused me of throwing the fallen items. I explained that I didn’t and asked for the table to be moved and the last-minute jobs to be completed. As soon as she left the room I broke down in tears sobbing. A few minutes later she came back into the room asking me why I’m crying and I kept telling her to go away. She then kept commenting on my drinking which angered me more. She eventually gave in and left and I continued sobbing.

The worst night of my life using live-in care happened when this carer put me to bed. I use a sleep system which consists of a knee block, cushions and brackets. She had been shown how to use this sleep system by both my Mum and my friend on several occasions. This time I mentioned she had forgotten the sixth bracket but she denied there was a sixth bracket. I knew for a fact there was as we had demonstrated it to her and she had done it before. I repeatedly told her there was and that she should check under the bed or in the wardrobe. She reluctantly had a brief look but couldn’t find it. I told her that it is definitely in his room because I used it last night and without it, my shoulder will be in pain.

My frustration was taking its toll and I broke down crying. I asked her to leave the room so I could compose myself but she refused and began to tidy things up and turn my music off. My mental health was already in an extremely vulnerable state over this past year and that night I felt very suicidal to the point I was trying to suffocate myself with the duvet.

Eventually, I calmed down and I just had to cope without the extra bracket. The carer commented on not wanting to work with me anymore. I mutually agreed this was never going to work and I was hurt by the way she treated me.

The next morning I called my Mum to come and take over my care and I called the agency wanting the carer removed. The carer still had to do my morning care and as she was making my bed, she found the sixth bracket under my bed.

A few hours later my Mum arrived but the carer refused to leave despite saying she didn’t want to be with me either. My Mum then phoned the agency explaining the issues that the carer then denied. The person on the phone then said I’m an alcoholic, difficult to care for and would Mum manage? I was so offended by those comments I left the agency with immediate effect.

From that day my Mum left her full-time job as a science technician to become my live-in carer and my parents decided to move back to Hampshire from Somerset.

Care Agency 3, 4 & 5 (October 2017 – April 2018)

During this period, my mum took over my care full-time. Luckily because she was caring in my property I could pay her wages with my direct payment. Also because mum was helping me, I decided to try some more expensive agencies in the hope they will provide more quality care. However, I could not afford this full-time. Therefore I would use the agency on a part-time basis and then have my mum care for me the other times.

Over the six months, I did get in contact with three agencies. The first agency had no success finding a suitable carer.

With the first agency, a new potential carer called me on the phone so I could talk to her about my care and see if she would be suitable for me. I continuously asked her if she had read the care plan and guidelines I provided and she couldn’t give me a straight answer. She kept saying that the office told her I was struggling with carers and I wanted to check her language skills. I tried to explain it wasn’t just the language but to see how competent she was in understanding my care, my disability and whether we would have a good working relationship.

She then said things about me that were false like I am paralyzed and have a drinking problem. For the majority of the phone call, I couldn’t get a word in and at one point I had to ask her to listen to me. Eventually, I just said I will contact the office and if suitable they will be in touch.

Later, I emailed the office saying she would not be suitable and that she was given false information about me. I then said I wanted to cancel my contract with them with immediate effect.

The second agency did do an assessment with me but never managed to get me a carer or contact me to say they wouldn’t be able to provide me care.

The third agency I was already aware of them as I knew friends who used them but with mixed reviews. Again, I did an assessment but they were also unable to provide me with a carer.

However, on one occasion, my doorbell rang and an Eastern European lady with a suitcase turned up at my door saying she was my new carer despite not being told anything. I immediately phoned the agency to find out who sent her and nobody would tell us.

After speaking to this woman for an hour I knew she wouldn’t be suitable. I asked where she could go and the agency replied back home to south London. However, she did not live in south London but came from another client in south London. Her actual home was Hungary. So basically this agency had no idea who sent her, where she was previously working or where she lives. Eventually, they sent her to a local hotel until they could find a job for her.

After that, I didn’t have any trust in that agency either which just goes to show that the more expensive agencies aren’t as any better as the cheaper ones.

Care Agency 6 (April 2018 – Jan 2019)

Carer 13

The first carer did a total of 3 shifts. She had experience with Cerebral Palsy but lacked confidence driving my mobility vehicle. Just before she was due to return for her fourth shift, the agency phoned my Mum, not me, to say she wouldn’t be returning for “personal reasons”. I understand carers have the right to privacy but I was concerned she left me because she didn’t want to work with me or left me for a better position.

Carer 14

The second carer arrived a month later. She was the same age as me with no live-in care experience. She complained she was homesick all the time, despite visiting relatives every afternoon on her break. She was extremely lazy doing minimal amounts of work. She’ll do my care and prepare meals but would spend the rest of the day in the garden smoking and on her phone rather than tidying, cleaning or doing laundry. Plus she refused to take me to two music gigs, one in London and one in Bristol, despite booking them months ago and making her aware when she took the job, she would have to help me travel the country and attend gigs at times. We mutually agreed this wasn’t going to work so I asked the agency to begin finding a new carer.

In addition, I had a suspicion this carer may have accidentally caused the death of my pet rabbit by overfeeding him grass and vegetables without my knowledge when he is an indoor rabbit who should only eat vegetables as an occasional treat.

Carer 15

In December, I started with a third carer but I knew from the start she wouldn’t be suitable. She didn’t know much about my disabilities, had poor hearing and had no confidence driving my wheelchair.

The first couple of weeks were quite difficult and I became easily frustrated. I then had my Mum care for me over the Christmas and New Year period.

The carer returned on 2nd January and within an hour of her shift, the agency emailed me to say this carer would not be returning after this two-week shift and that they wanted to arrange a meeting to discuss future arrangements. I asked the carer directly and she said she wasn’t aware of this. She admitted after the first shift, she mentioned to the agency it was difficult and that I came across as rude at times but that she was still willing to try again. She continued by telling me she was considering leaving the agency due to financial/employment issues.

I replied to the email asking if we can speak on the phone immediately. The woman at the agency said she was too busy today. I was getting suspicious about this and thought they were planning to remove me as a client but couldn’t tell me by email or phone.

The next day, my Mum text me to say she had received a phone call from the agency yesterday saying I had been rude to the carers, resulting in them being forcibly removed and they do not think they can provide care services to me anymore. I was so angry and upset. Not only did they lie to me about not being available to chat with me on the phone but to talk about me to my Mum behind my back when I’m more than capable to speak for myself. Moreover, none of the carers were “forcibly removed”; the first chose to leave for personal reasons, the second carer we mutually agreed to end the position and the third chose to leave the agency.

After several more email exchanges, my contract with this agency was immediately terminated.

Care Agency 7 (February 2019)

This agency was continuously mentioned by my social worker but I was sceptical of using them due to poor reviews and reports on them. However, by this time, I was starting to run out of choices. But as expected, it was another disaster.

I did the usual assessment process and they then sent me a profile for a potential carer. I wasn’t really sure about her but I had to give her a go. The day before she was due to arrive, I got a message from the agency saying she has had a family emergency and needed to return home. They said they would send me a profile for another carer soon. That evening I received another profile but again wasn’t sure. I decided to sleep on it and get in touch with the agency in the morning. However the next morning, the doorbell went and the carer and a member of the agency team were at my door.

I was perplexed as to what to do at first but decided to have a chat with her. She appeared quite friendly and confident when I was talking to her so I decided to give her a go.

Carer 16

On the first day, Mum stayed to help her know what to do. At one point I had to go to my physiotherapy appointment and we asked if she was happy to drive. She was but as she got in the car, she asked Mum where the accelerator and brake pedals were. She then ended up driving on the wrong side of the road. After that, I didn’t trust her driving.

A few days later, halfway through doing personal care, she said she didn’t want to return. I tried to understand why but she couldn’t give me a straight answer. She still had ten days left on this shift and I explained there isn’t really any point in her staying if she isn’t happy here and I wasn’t particularly keen on her either. After my care, I phoned the on-call manager to see if there was anywhere for the carer to go because she did not live in the UK. I spent 30mins trying to explain that the carer and I have mutually agreed it’s not working out and that my Mum is available to take over asap. The carer then kept taking my phone into her room and speaking to the manager in her own language. Eventually, they said there is a halfway house in town that carers use between clients where she can go the following morning.

A week later, one of the managers came to my house to discuss the issues with the previous carer and what to do next. Apparently, the carer struggled to roll me then the manager wanted to see how I roll. Despite rolling the same way for 10+ years, the manager told me I should do it differently. I nodded along and didn’t complain about it. She then said the agency will continue looking for a suitable carer and be in touch.

While I waited I also had an assessment with another possible care agency. They seemed keen to have me and managed to find me a suitable carer. I said yes to this carer as it looked like the other agency still hadn’t been successful.

Two weeks later, the other agency emailed me asking if I would still want them to find me another carer. So basically they have done nothing these past two weeks while I have been waiting for them to find me a carer – poor communication there. By this point, I already said yes to the other carer. So I just told them thanks but no thanks.

Care Agency 8 (February 2019 – January 2022)

Carer 17

This agency provides self-employed carers. My first carer was with me from February to June. For the first 2/3 months, I found her very good and experienced. But in the latter stages, she became very irritating and controlling. She would talk non-stop and very loudly. She would take over my house; opening windows every day even when it was cold, hoover whenever she pleased and has the TV up loud, which disturbed me when working.

Also, she had a pet dog with her. When the agency explained she would be bringing a dog, I was fine with it. However, this dog became very annoying, barking at everything and the carer never disciplined it.

Another issue was her hearing wasn’t great but instead of saying pardon, she would just guess what I said. On several occasions, I reminded her to say pardon if she misheard me. One time she decided to shout pardon at me rather than saying it politely.

Our relationship took a turn for the worse in mid-June. I was due to go to a concert with my friend who used to work at my domiciliary agency and her 6-year-old daughter. My friend was going to do my care from Friday evening to Sunday morning, giving the carer the weekend off. Most of the time I choose to shower every other evening. However because the shower takes more time and I wanted to spend social time with my friend and her daughter, I asked the carer to shower me Friday morning. I was shocked and hurt by her reaction. She said, “I’ll only do it if you pay me extra.” I explained it will only take an hour and she was scheduled to work 10 hours that day. I have a right to shower when I please. Plus the carer herself showered at different times of the day. I spoke to her very little on Friday because I still felt so angry with her attitude. Also, I may have removed her from the position early if it wasn’t for the fact my parents were on holiday.

The following Monday, I wrote an assertive letter to the carer, raising my concerns over her behaviour and attitude. I wanted to take some initiative and resolve the problems rather than give up on her. After she received the letter, we had another verbal disagreement. I can’t remember the details but she basically said she will look for a new client for when Mum returns.

On Tuesday, she kept being distant from me and making several phone calls in the garden. In the evening, I explained the plans for when my friend and I go to another concert on Friday. My friend couldn’t arrive until 3pm, meaning I needed the carer to stay with me until 3pm. The carer then announced she had already scheduled a job interview for that afternoon. Luckily my Mum was home by then so I had to organise Mum to sit with me from midday to 3pm.

However, on Wednesday, the carer complained that she felt sick. On Thursday morning, she came into my bedroom early and asked me if she could get me up early because she booked herself a GP appointment in Winchester and she doesn’t think she will be well enough to do my care the rest of the day. I was getting more suspicious she was pulling a sickie to leave me early. I made the decision that I’ll just get Mum to return immediately and regardless of whether she gets this other job or not, she can not return.

I emailed the care agency explaining all this. An hour later the care manager rang me to thank me for letting them know and that they had no idea she was considering leaving. The carer was due to support another client in 2 weeks so the agency had to start finding another carer.

Basically, this carer took me on as a client as a favour to cover my parent’s holiday then as soon as Mum returned, she went to find a job that pays more money.

Carer 18

During the carer 17’s period with me, I also tried out a second carer for a week while the first carer had a break. This carer was awful. She was bossy, ignorant and patronising. During the shadow period, she kept talking to my Mum instead of me all the time. Every time I tried directing something or reminding her of a task, she either ignored me or kept saying “I know”. She was even telling my Mum how to do my care, even though Mum has been doing it for 25 years. Moreover, she couldn’t reverse my car in my driveway and kept parking it on the street. After a week, I decided she was not suitable for me and she left.

Carer 19

My next carer began in mid-August 2019. Overall, she was good. My only concern is she got very anxious and I was worried about how she would cope in unexpected or spontaneous situations. Also, I felt she was a bit overprotecting sometimes and overstepped the professional boundaries and forgot I’m her client and not her daughter. She left in February 2020 to live with her partner near London.

Carer 20

I tried another carer two days before the first lockdown in March 2020 but she was awful and unsafe. As soon as she entered my home she criticised everything – my electric front door, my bedroom wallpaper and my choice of food. She was even expecting luxuries such as her own on-suite bathroom. She also kept talking to mum instead of me and whispering stupid questions such as “Will Emma brush her teeth?”

When it came to personal care, it was the first time I feared mum leaving me on my own with this carer. She shadowed mum those two days, criticising everything as we went. Then on the second day, I suggested she help me transfer to the toilet while mum observed. I hoisted up, pulled my clothing down then instead of pushing on my knees as I lowered onto the toilet chair as shown the previous day, the carer started pulling my sling from behind. I tried telling her to stop and she ignored me. In the end, mum had to take over because it was so unsafe.

In another incident, I asked the carer to raise the bed and as soon as she did I could tell she pressed the wrong button as it was tilting. I told her to stop and she denied she was pressing the wrong button. I was scared something was about to snap so I called mum from the next room to stop her and readjust the bed.

That afternoon, the carer went out for a walk and as soon as she left the house, I called the agency to say she wasn’t suitable and I would like her to leave immediately. I hoped the agency would call her straight away but when she returned from her walk mum had to tell her. She kept questioning why and mum had to keep politely stating it was just not suitable. Eventually, she left that afternoon.

Carer 21

I had a new carer from July 2020 to January 2022, doing two-week shifts alongside mum. She has been the longest-serving carer I’ve had so far and a majority of the time she was great. However, there were still a few issues.

Firstly, she would get homesick and therefore could only manage two-week shifts. Also, there were a couple of occasions she decided she wanted to leave days earlier to deal with “personal issues” and so mum had to take over at little to no notice.

She also has Borderline Personality Disorder so I had to deal with her fluctuating mood swings, which impacted my own mental health.

She left in January 2022 to get work closer to home. We said goodbye on good terms.

Care quality overview

So as you can see, I’ve been through a lot of carers over the years. It still saddens me that I feel I’ve lost my independence and have very little trust in the care industry but thankful I have got the support and unconditional love from my mum.

I’ve spoken to other disabled friends and acquaintances who have also experienced this level of poor care, which goes to show it is not an isolated incident.

There is no easy way to resolve it but by raising awareness and spreading the word, authorities and the general public can take notice of how bad the care industry is.

Check out my previous blogs on care experiences:

Can you relate to these care experiences and feel the care industry is not fully caring? Share your stories in the comments box or on social media.

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